Lupus?! A wha dat?!

Just another emcee who gets free. Vessel of philanthropic vision fueled by theophilic purpose.

Category: A Wha Dat?!

Weekly Wha Dat?!

Blow is the James Baldwin of our time. Using his gifts as a storyteller, he writes of poverty, race, bullying, gender and sexuality – the issues, struggles and process of self-discovery of our era.” 

“When we look at the life of Moses, we see humility isn’t bashfulness. It isn’t self-deprecation. It isn’t about ignoring your strengths (or weaknesses). Humility doesn’t mean you can’t be confident. True humility is understanding where your confidence comes from—and that confidence should come from your identity in God.”

“I never thought anything like this would ever happen to someone like me,” Erika Schoonover said. Schoonover and her fiance Josh Wilberger have had to put off their wedding for years. Schoonover has lupus, and she’s already lived past the life expectancy for someone with her disease. 

” I do not relate these experiences to gain sympathy. I broke the law knowing there would be consequences. I tell my story because this is the side of the system we didn’t get to see where I grew up. In the wealthy suburbs of Massachusetts, our shared narrative told us that people who didn’t live where we lived, or have what we had, weren’t working as hard as we were. We avoided inner city streets because they were dangerous, and we relied on the police to keep people from those places out of our neighborhoods. Whatever they got, we figured they deserved. My total, unquestioning belief in this narrative was the reason I arrived in Roxbury, fresh out of law school, eager to incarcerate everything in sight.”

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Senator Morrison Commends the Lupus Awareness Group of Guam

Lupus Walk for A Cure- South Carolina

Lupus Walk for A Cure planned for Saturday

Five Things People with Lupus Should Know Before Starting a Springtime Exercise Routine

http://www.lupus.org/blog/entry/5-things-people-with-lupus-should-know-before-starting-an-exercise-routine

Talib Kweli & Ma Dukes J. Dilla Episode by The Combat Jack Show

http://soundcloud.com/thecombatjackshow/the-j-dilla-episode

Great interview with Talib Kweli and Ma Dukes, mother of the late great J Dilla. About an hour and ten minutes in, Ma Dukes speaks about Dilla’s battle with lupus. As I’ve shared before, Dilla was one of the first people I thought of when I was diagnosed.

DHVI finds lupus antibodies may hold key to HIV cure

http://m.dukechronicle.com/articles/2014/03/27/dhvi-finds-lupus-antibodies-may-hold-key-hiv-cure

Weekly Wha Dat?! March 2nd

Heavy Meddle: I Have Lupus — But My Friends Won’t Cut Me Any Slack

An excellent advice column I stumbled upon. Greatly appreciated this perspective.

Scientists confirm gene mutation linked to lupus

Japanese researchers have confirmed for the first time an association in mice between a genetic mutation and the intractable autoimmune disease lupus erythematosus.

Kilimanjaro climb aims to spread word on lupus

“He wakes up each morning with the pain,” said Bertrand. “His pain is often a 7-plus, and he’s going to experience the pain 24/7 for the rest of his life. Rich was an avid runner, 30 hours per week stuff. Now, he is afraid to exercise for 30 minutes. He is an athlete, but he can only dream of what I did.”

‘I’m still not fully recovered’: Eternal’s Kéllé Bryan pours her heart out on The Big Reunion about being diagnosed with Lupus

Talking about when she was told by the doctor she had the potential life-threatening condition, she said: ‘ I just thought, “So are we talking a week off or something,” and in the end he [the doctor] just went, “You need to sit down … this means you could end up in a wheelchair, you need to take this seriously.”

 

Researcher receives grant to study stem cell death in lupus patients

“Without healthy niches, the bone marrow cannot make normal blood components,” said Lijun Yang, M.D., an associate professor of hematopathology in the UF College of Medicine. “When you stain lupus patients’ bone marrow for dead cells, it is dramatic. In contrast to normal people, most lupus patients’ bone marrows are full of dead cells. Twenty, 30, 50 percent of their cells are dead.”

Remembering Dilla

This past Friday, the 7th, would have been J Dilla’s 40th birthday. Today, 8 years ago, he passed away due to complications from lupus.

When I was diagnosed two years ago he was one of the first people that came to my mind. He lives on through his incredible body of music. Peep the video where Questlove offers insights into Dilla’s method and enjoy a special episode of Crate Diggers that talks about his expansive record collection.

Children with systemic lupus erythematosus (SLE) had an increased risk for cancer, particularly for malignancies that were hematologic in origin, analysis of data from a large clinical cohort showed.

Open Letter to Judge Judy

Over the last few days many of you have expressed your concern and outrage over Judge Judy’s recent remarks about lupus during her interview on Friday, Oct. 11 on Fox News with Megyn Kelly. We share your outrage and believe that her remarks were insensitive and minimized the impact and suffering of those living with disease. We have taken action and sent a letter to Judge Judy, from Sandra Raymond President and CEO of the Lupus Foundation of America, asking her to retract her remarks.  We are following up with her office, and will keep you apprised of any developments. Below is a copy of the letter that was sent to her office.

http://www.lupus.org/blog/entry/open-letter-to-judge-judy

Brian Mooney

Educator, Scholar, Author

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Lupus?! A wha dat?!

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